In mid-November, the Demands ventured up to Garden City, NY for the Foundation for Prader-Willi Research’s annual conference. We finally got to meet other parents from around the country who we had only spoken to on the phone, through email or on facebook. It felt so good to be around people who understood everything you had gone through because they had been there too. Even though everyone came from such different backgrounds, we all had one thing in common. It felt like a long lost family. I guess if you have to go through something like PWS with your child the bonus can be that you are surrounded by amazing people who want the same things for their children.
The conference was research heavy, so we heard from a lot of scientists, doctors and pharmaceutical companies. There are some pretty amazing things going on right now for PWS research. We are hopeful for Kemett’s future.
We also got to spend some time in Manhattan and tour the city. It was cold and rainy so we did the best we could with the time we were given.
Overall our trip was a success and we came back inspired and motivated to continue raising money and awareness about Prader-Willi Syndrome!
Enjoy the pictures!