One SMALL Step!

Hi Everyone,

We had our first One SMALL Step walk on September 13!  It was a cold and rainy day.   We were not sure anyone would show up, but we were pleasantly surprised.  We had about 200 people come out in this terrible weather to support our family and the other seven PWS families that came.  What an amazing and humbling experience.  We are so lucky to have such a great support system around us.  We had a large raffle, a wine raffle, a raffle for a vacation, face painter, Zumba instructor, photo booth, bounce house (which we didn’t get to use) and bbq donated.  We also had great volunteers and in-kind donors.  This event would not have happened without the support of our community and their generous contributions.

Kemett is a star!  Here is a link to a great news story our local fox station did about Kemett and my co-hosts son, Joseph.

I am excited to announce that we raised over $117,000 for the Foundation for Prader-Willi Research.  100% of this money will go to research and clinical trials.  FPWR’s mission is “To eliminate the challenges of PWS, through the advancement of research.”  Andrew and I are so hopeful that Kemett will get to live his life FULL!  He will  have his dreams come true!  The future is bright and we feel so lucky to be a part of this, to contribute and make a difference.

I am also excited to announce that Angela, my co-host, and I won Hosts of the Year at the FPWR conference!  We raised the most money in the world and will get to host next year’s conference here in Austin, TX!  Of course we could not have done it without the fundraising efforts of all of the Austin area PWS families.

If you missed it, here are some great pictures below of our event, thanks to Blackbird Film, CO.  I hope you all can make it out next year!

Love,

The Demands

 

Group shot!  Thank you everyone!

Group shot! Thank you everyone!

Andrew, Kemett and I!

Andrew, Kemett and I!

Welcome!

Welcome!

Zumba!

Zumba!

The Frederick's!

The Frederick’s!

Demand Family

Demand Family

Angela, Joseph, Kemett and I

Angela, Joseph, Kemett and I

Ready, Set, GO!

Ready, Set, GO!