PWS Awareness Month- Day 22

Hey Everyone,

 We hope that you all will join us for our 3rd Annual One Small Step Walk!  Details are below.  

One Small Step Flyer 2017-01 (1)

 

Love,

The Demands

 

One Small Step Walk for Prader-Willi Syndrome Research at the Belterra Recreation Center in Dripping Springs, Texas on October 10, 2015. Photo by Lauren Gerson.

 

 

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PWS Awareness Month- Day 3

Hi Everyone!

Today I wanted to check in about our #15forthe15th Challenge.  Do we have anyone participating with us?  It has been so nice to see our pages light up with new healthy eating, hanging out with the family outside, and reading!

May 1, I began Whole30.  We did a huge makeover of our diet after Kemett was born, but after being pregnant and breastfeeding, I need a reset.  I have to remind myself that between PWS and allergies, Kemett doesn’t get to eat a lot of foods, so this isn’t a big sacrifice for me to do this for 30 days.  I prepped my breakfast for the week on Sunday, and bought some food for my lunch and snacks.  Today is Day 3 and I think I can do it!  I just need to make sure I’m getting enough water in, and calories since I am nursing.  I am looking forward to having more energy!

Kemett is riding his tricycle or walking for 15 minutes a day with the family.  He got a tricycle for Easter, and is slowly catching on.  I cannot wait to see him actually pushing the pedals on his own.  Right now he is just getting used to the movement.  Our goal is to get out while the weather is still nice and not too hot for him.  Hope we make it through the month!


Andrew just competed in Master’s National’s swim meet (and received a medal in the 50 Free- Go Andrew!), and has decided to swim 15 miles one week this month!  We will let you know when he’s picked his week.

We hope you will join us this month and support Kemett in a #15forthe15th challenge!  We’d love to feature your story in our blog of why you are participating in #15forthe15th- let me know if you’d like to do that!

Over the next couple of days we will give doctor updates and next week therapy.  Can anyone guess how many doctors/therapy appointments Kemett had in April?  We will announce the answer later today!

Love,

The Demands

15forthe15th

Get Ready for May Awareness Month!

Hi Everyone!

We are excited for May Awareness Month to get here!  Since we are doing a walk later this year, we wanted everyone to join us in another #15forthe15th  Challenge in May!

Kemett is still thinking of his challenge.  I will be attempting Whole30- I need some planning to go into that first!  I hope that others will do something fun!  Last year people read 15 minutes a day to their kids, walked 15 minutes a day with their family, cleaned up their diet, swam, rowed, ran and biked 15 miles in one week, and so much more!  There is no right way to do this.

If you’d like to join, let us know!  We’d also love to feature some of you on our blog this year and your journey in spreading awareness for PWS!

Thank you for all of your support!

Love,
The Demands

15forthe15th

PWS Awareness Month- Day 9

Hey Everyone,

After yesterday’s announcement, I’m sure you are wondering- Are they going to put a walk on this year?

This year we will not be hosting a physical walk.  We will have a month old and our co-host Angela is super busy with her four kids!  So we’ve decided to sort of take this year off.  Instead, we will be doing a virtual walk full of fun challenges!

One Small Step Dripping Springs Virtual Walk

October 15, 2016

Wherever  you are!

We would love for people to get active in support of Prader-Willi Syndrome, as well as active on social media!  First, we will talk about the challenge, and then about what we’d like for you to do!

The Challenge!

We are asking people to do an activity by October 15th that will involve the number 15 for the 15th Chromosome: #15forthe15th

Here are some examples:

  • Walk/Run 15 miles
  • Walk/Run 15 minutes a day
  • Take 15,000 steps a day/week
  • Swim 15 miles
  • Do 15 sit ups/push ups a day
  • 15 days in October to Raise Awareness about PWS
  • For 15 days give up sugar, your favorite food, or exercise daily
  • Raise Money!  Ask your friends to make donations- “I’ll do 15 push-ups for every $50 I raise for FPWR!”
  • Get together with your friends/family in your city
  • Find something that interests you and set a goal. Get creative! We want to hear your ideas!

Then What?

  • Announce your challenge on social media!
  • Use the hashtags: #15forthe15th, #OneSmallStep, #InItForKemett, #FPWR
  • Take pictures and post your progress on social media!
  • Join our event page on our One Small Step Walk Dripping Springs Facebook Page to encourage others and hear about challenges!

You can start now or wait until October!  No matter what you decide, we want everyone to be excited about raising awareness about PWS and One SMALL Step!

We will talk about The Foundation for Prader-Willi Research next week and all that they do for our kids!

As always, please feel free to ask us any questions and let us know what challenge you are accepting!  We will announce ours later today!!

Love,
The Demands

 

One Small Step Walk for Prader-Willi Syndrome Research at the Belterra Recreation Center in Dripping Springs, Texas on October 10, 2015. Photo by Lauren Gerson.

One Small Step Walk for Prader-Willi Syndrome Research at the Belterra Recreation Center in Dripping Springs, Texas on October 10, 2015. Photo by Lauren Gerson.