PWS Awareness Month- Day 31

Hi Everyone,

This is a huge thank you to everyone who joined us for the month!  Whether you read a couple or stuck through the entire month, we thank you!  I am always humbled and amazed when I hear family, friends and acquaintances say they read our blog.   We appreciate all the questions and for everyone who shared the blog, photos, bought shirts, donated, did a #15forthe15th challenge, etc.  Spreading awareness is key and y’all have made that happen!

We also hope that you have learned more about PWS and more about Kemett.  We will try to keep you updated throughout the year, but life gets busy.  If you have questions during the year, please ask us!

We also hope that you will join us at our One SMALL Step Walk on September 30th.  If you are not in Austin, feel free to virtually walk that day to support Kemett!

I want to give a shout out to some of the #15forthe15th superstars!  First, my mom walked almost every day this month and walked well over 100 miles!  Andrew swam 15 miles in one week!  Kemett did something active every single day, and we will continue to build on that with him.

And not to toot my own horn, but I completed Whole30 yesterday.  This was something I kept putting off, but am so happy I did.  I was in a bad rut from being pregnant and nursing.  I feel so much better- my energy is up, I’m sleeping better, I can focus, and my anxiety is down.  I am in the reintroduction phase for the next 10 days to see what my body doesn’t like.  I got a glimpse into Kemett’s life because I couldn’t eat a lot of what he can’t eat, and it wasn’t too bad.  I had to prepare my own meals and take them with me, just like I do for Kemett.  Life now a days, makes a lifestyle change and living with allergies so much easier.  Believe me, there are days I wish he could just be an easy kid and we could just stop and grab food.  Or that he was just an easy PWS kid with no allergies and we could just stop and grab food.  But we’ve figured out our system and it works.  Whole30 made me appreciate what Kemett goes through.  It also made me feel better, and although I won’t be continuing the full whole30 diet, I did learn a lot about what my body needs and will be continuing that!

Thanks again for following our journey!  Here is the link to our personal fundraising page!


The Demands

One thought on “PWS Awareness Month- Day 31

  1. Thanks for sharing your story I will miss the daily blogs. I too have been “in it for Kemett” by going to gym and walking this month and will continue. Love y’all 😘

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