PWS Awareness Month-Day 27

Hey Everyone,

So after reading 26 days worth of posts you might be thinking- How can I help?  Well then this is the post for you.  Below are just a few ways that you can help our family:

  1. Call, text, email, facebook message: It is always appreciated to hear from friends just asking how we are doing- both about Kemett and just about ourselves.  Sometimes we may not realize we haven’t reached out in a while.  It is a wonderful feeling to catch up with a friend, even if its a few minutes.
  2. Ask Questions: I hope what you have figured out from this month is that Andrew and I are not afraid of questions about Kemett.  We’d rather you ask a question!
  3. Give us a heads up:  If you are going to have a party, just let us know the food situation and timing of things.  We just would hate to show up and be thrown off (although we are good at being flexible when needed).
  4. Be inclusive:  When possible, we appreciate people making an effort to be inclusive of Kemett.  Remember it’s not his fault that he has PWS or food allergies.  It’s nice to feel included on meals/treats.  Please ask us, if you have questions.  On the same hand, please let us know how we can be inclusive of your family.  It’s not all about us!
  5. Share blog posts and facebook posts: The only way we can educate is by people sharing information on PWS, research, your point of view, or our family.
  6. Walk with us: This could be in person or virtually!  Our virtual walk is on October 15, and we hope that you will join us in our #15forthe15th Challenge and support Kemett and his friends!
  7. Donate: Your time, services, in kind items or financially to our One Small Step Walk!
  8. Never feed Kemett– We will bring food for Kemett or know what you have before we come.  Since Kemett’s diet is so strict, we ask that you never offer Kemett food outside of what we have for him and his feeding times.
  9. Please follow our “rules”– These were in another post, but we would be happy to resend them if you just ask!

Thank you for your love and support!


The Demands



Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s