I like to punch and kick and I’m ONE MONTH OLD! ( A quote from one of my favorite SNL skits with Molly Shannon, in case you were wondering what I’m talking about.) Kemett has definitely started squirming so much more and does what I call his robot dance. We love seeing him move so much!
The past two weeks home have been filled with doctor appointments- Pediatrician, Geneticist, GI, Orthopedics, etc. We are pros now at going to the doctor with his feeding tube and pump and getting him fed. I have also pumped on the go as well in the car. We are still waiting on test results to come back from the geneticist. It will be a few more weeks until we know what is going on. We also have home health services – a nurse, physical therapist and speech therapist. They will be coming twice a week to work with him! We are so happy about this. We are still doing his PT three times a day and feel like he is getting stronger. The PT thought he looked great for a baby with hypotonia when she evaluated him. We also hope that speech therapy will help improve his bottling. Early childhood intervention is going to do an assessment this week as well to see if he qualifies for any additional services.
It has been great being home with him and we have been able to settle into somewhat of a routine.
As many of you know, my father passed away last September 24th. It was a hard day for us last Tuesday. It has been a hard year and a half. I miss my dad so much and know that he would have been an amazing grandfather. I wish Kemett Claven could know the man he got his middle name from. Instead, he will hear wonderful stories of his grandpa from family and friends. He was such a kind, caring and loving father, husband and friend. He would do anything for anyone, always helping family, friends, coworkers and neighbors. I hope that we can pass this on to Kemett, my dad’s legacy. I know that my dad is looking down on us and is our guardian angel. I know he is protecting us.
Thank you as always to all of you for your kind words and prayers!