Kemett is 1 Month!

I like to punch and kick and I’m ONE MONTH OLD! ( A quote from one of my favorite SNL skits with Molly Shannon, in case you were wondering what I’m talking about.)  Kemett has definitely started squirming so much more and does what I call his robot dance.  We love seeing him move so much!

The past two weeks home have been filled with doctor appointments- Pediatrician, Geneticist, GI, Orthopedics, etc.  We are pros now at going to the doctor with his feeding tube and pump and getting him fed.  I have also pumped on the go as well in the car.    We are still waiting on test results to come back from the geneticist.  It will be a few more weeks until we know what is going on.  We also have home health services – a nurse, physical therapist and speech therapist.  They will be coming twice a week to work with him!  We are so happy about this.  We are still doing his PT three times a day and feel like he is getting stronger.  The PT thought he looked great for a baby with hypotonia when she evaluated him.  We also hope that speech therapy will help improve his bottling.  Early childhood intervention is going to do an assessment this week as well to see if he qualifies for any additional services.

It has been great being home with him and we have been able to settle into somewhat of a routine.

As many of you know, my father passed away last September 24th.  It was a hard day for us last Tuesday.  It has been a hard year and a half.  I miss my dad so much and know that he would have been an amazing grandfather.  I wish Kemett Claven could know the man he got his middle name from.  Instead, he will hear wonderful stories of his grandpa from family and friends.    He was such a kind, caring and loving father, husband and friend.  He would do anything for anyone, always helping family, friends, coworkers and neighbors.  I hope that we can pass this on to Kemett, my dad’s legacy.  I know that my dad is looking down on us and is our guardian angel.  I know he is protecting us.

Thank you as always to all of you for your kind words and prayers!

Love,

The Demands

I'm 1 Month!

I’m 1 Month!

Mama and Kemett

Mama and Kemett

Chilling in the sun with my new hat and sunglasses!

Chilling in the sun with my new hat and sunglasses!

Who Dat?!?

Who Dat?!?

My adorable outfit!

My adorable outfit!

In my grandpa's (C.J.) sweater.  That is a picture of my mom as a baby next to me.

In my grandpa’s (C.J.) sweater. That is a picture of my mom as a baby next to me.

Home Sweet Home

Hello!

This is a quick update to let you know we made it home yesterday with Kemett!  We are so glad to be at home and together all in the same space with the puppies.

Leaving the hospital

Leaving the hospital

At home for the first time!

At home for the first time!

I’ll update again later this week to let you know how everything is going, as well as what else is going on with us.

Thanks for your continued support!

Love,
The Demands

Rooming in with Kemett

Hello!

Andrew and I passed our NG tube training by demonstrating that we could insert the tube, check placement, etc, three different times.  We feel very confident.  We also learned how to use his new feeding pump for what he does not eat out of a bottle.  Our goal is to have him eat completely out of a bottle or breast feed, but his low muscle tone makes it harder for him to keep up.

Enjoying College Football with Mom and Dad!

Enjoying College Football with Mom and Dad!

Last week the doctors decided that once Andrew and I learned how to insert the NG tube, we would get to “Room In” with Kemett.  NICU has a room down the hall that is like a hotel room: bed, tv, microwave and fridge.  You get to have your baby with you with no monitors to see how you do with a medical team down the hall.  The nurses come and check on us every 6 hours or so and check his vital signs.

Tummy Time with Mom and Dad

Tummy Time

Rooming in has been great.  We can actually relax and rest a little more because he right there with us.  We don’t have to go between our nesting room and NICU all day long.  It is a little scary that we can’t track his every heart beat or breath but I’d much rather have him his leads and wire free any day.  We love getting to spend this quality time with Kemett.  He has made Andrew and I so happy!  We love to see him squirm,  react to us and improve every day.  Overall he is a quiet baby and sleeps well between feedings.  We will see what happens when we get home!

PT with Dad

PT with Dad

Tomorrow he will go back into his NICU area and we will go home to prepare for his homecoming!  We hope he will go home on Monday, but if his lab results are close to coming in, they will keep us for a few days.  We keep praying that these tests will come back negative.

I will definitely keep you all updated on what happens this next week.

Again, thank you for your support.  It means so much to our new family!

Love,
The Demands

Kemett’s Update: Week 2 and 3

Hello friends and family,

We have been in NICU for two weeks now.  We are still nesting at the hospital and are grateful for that.  Andrew went back to work last Tuesday, and my mom is here during the day with me.  Andrew comes and does physical therapy with him each morning before work and after work.

My PT with Dad

My PT with Dad

We are ready to take him home.  When the doctors do rounds the only issue they talk about is his feeding; that is what’s keeping us here.  His lungs and heart are great!  His movement is improving everyday.  He is squirming and interacting with his mobile, and his range of motion is constantly getting better.  We are also working with physical therapy still on range of motion and occupational therapy for feeding.

My new bed

My new bed

I talked to the doctors during rounds yesterday about what our plan is to go home.  This is what we’ve learned:

He will definitely go home with feeding  tube.  Andrew and I will begin learning how to insert the ng tube and do the feedings ourselves. They will train us over the next few days and make sure we are comfortable.   We may even room in with him here for a night or two before we go home.

Self soothing

Self soothing

We don’t have to be here waiting for test results that may not come back for another couple of weeks.  We are praying that these tests come back negative.  Eventually we may have to put a g tube in his stomach for feeding.

My first smile

My first smile

We would like to take a minute to thank everyone for their love and support.  We couldn’t do this without all of you and your prayers.  We continue to appreciate every one of you.  Please continue to keep us in your prayers as we hopefully transition home soon with Kemett.

Who dat?

Who Dat?!

Love,
The Demands

Kemett’s First Week

Kemett is the most adorable thing so obviously we are excited to take pictures of him.  Here are a few highlights from his first week.

My first picture

My first picture

Our family

Our family

Kemett with Grandma

Kemett with Grandma

Kemett snuggles with Ganya

Kemett snuggles with Gainya

Kemett with Grandpa Demand

Kemett with Papa Demand

Aunt Sarah and Kemett

Aunt Sarah and Kemett

Snuggles with Aunt Amanda

Snuggles with Aunt Amanda

Dad and I fought today.  He didn't want me to sick on my IV.  I showed him.

Dad and I fought today. He didn’t want me to suck on my IV. I showed him.

Mommy feeding Kemett

Mommy feeding Kemett

IMG_4174

Flowers and charm bracelet from Sage

IMG_4164

Beautiful flowers from Kelly

IMG_4178

Roses from Andrew’s Mom and Dad. Beautiful!

Where we are now…

I write this post as I sit in the hospital.  Just over a week ago, I gave birth to the most beautiful baby boy in this world, Kemett Claven Demand.  He was 7 lbs 8 ounces and born at 7:29 pm on August 25, 2013.  The delivery didn’t go quite as I would’ve ever imagined it to.  Short story: 17 hours of labor turns emergency c-section.  Not enough meds turns too much meds.  Kemett to the NICU for breathing issues and me to recovery.

Our Family

From there, Kemett’s breathing seemed to stabilize and I was able to see him a few hours after his birth for the first time.  He returned to our room and spent Monday with us where he met a few of his family members: grandparents, aunts, uncles, etc.  During this time, we were informed that his muscle tone was low and he might have some other issues.  Doctors weren’t saying much, just finding us specialists or figuring out tests to run. This continued for a few days.

Later in the afternoon on Monday the decision was made to move him back to the NICU to observe his breathing again.  He has remained in the NICU ever since.  He began physical therapy, and we do it 3 times a day.  We are working on building his strength and muscles.

PT with Mommy

PT with Mommy

The doctors have also increased his feeding dramatically over the weekend to help him consume what a baby his age would be eating.  He’s taking it like a champ and looks better everyday.  He does have a feeding tube to help when he can’t finish the prescribed bottle, and he had an IV, but that was removed this weekend because of his increase in milk intake.

Getting fed by Daddy

Getting fed by Daddy

Monday he arched his back a few times which was new and exciting.  He’s turning his head more and grabbing a little bit, which he wasn’t doing before.

We have spoken to many doctors over the past week and haven’t learned too much.  Today tests are being sent out by the Genetic doctor, but those results won’t return for 2-3 weeks.  These tests are being done to help determine what has caused his low muscle tone.

We love our sweet boy beyond words and continue to work with him and help him grow each day.  We have been staying in a nesting room at the hospital since I was discharged.  We aren’t sure how long we’ll have this room for, but we really enjoy being close to Kemett.  Andrew returned to work today and my mom is here to help me with all it takes to be a new mom.

Mommy and her boy

Mommy and her boy

I can’t tell you how often I’ll blog or when we’ll have more information, but I can tell you that this blog will be as up to date as possible so we are able to share news, information, and love without having to make a hundred phone calls.

Feel free to sign the post and ask questions and we’ll try to get back to you.  Thank you so much for loving us and our little man.

Love,
The Demands